Lillie Shockney, R.N.
Breast Cancer at 38!



Lil and
Mom
Mom and Lillie
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"My surgery was transformation surgery-- I was transformed from a victim into a survivor. I didn't lose my breasts; I got a second chance at life."

People ask me, "Don't you get upset when you get up in the morning, get in the shower and look down and see that both your breasts are gone?" I respond and say, "No, I look down and see that the cancer is gone and smile."

-Lillie Shockney, R.N.
Breast Cancer Survivor

"We had three summers that kept us on our knees, first praying for her recovery then thanking God for her survival."

-Charmayne Dierker, President
  Mothers Supporting Daughters with
  Breast Cancer;
  Lillie's Mom


Lillie
Lillie D. Shockney
Breast Cancer

Survivors' Club


thermometer line

butterfly I've had the opportunity to experience breast cancer from three different perspectives: as a teenager watching my mother's best friend cope with this disease; as a nurse caring for mastectomy survivors; and as a survivor myself. Why say "opportunity"? Because I am an optimist...a breast cancer survivor.

butterfly My mother's best friend, "Miss Bertha," had her life change after she saw her doctor about an open sore on her breast that didn't heal. In the 1960s women were not well versed on the warning signs of breast cancer. My mother and I feared losing her. People didn't discuss "breast cancer," it was taboo. Miss Bertha had a mastectomy and demonstrated daily to me how much she valued life. She had a friend who had bilateral mastectomies. They spent hours talking, focusing on funny things that had occurred because of having breast cancer. People were confused as to why they would be laughing about a subject that was so serious. It was clear to me that they used laughter as part of their own personal weapon against this disease.

butterfly Miss Bertha was given a prognosis of only having five months to live; her passion for life and sense of humor directly contributed to her ability to beat these odds for 21 more years.

butterfly After high school, I attended nursing school and earned my RN degree. As a nurse, I learned that it was common practice in the late '60s and early '70s to go into surgery for the assessment of a breast lump not knowing whether or not your breast was still there when you awakened. During these years a survivor was asked to sign a consent form that stated if the biopsy was positive for cancer, the survivor may have a mastectomy. As a nurse, I grew to know the look of fear on the women's faces and always felt thankful that I was not one of them.

butterfly In 1992, at the age of 38, I found a lump in my breast. I wasn't alarmed because I had experienced lumps before which were cysts. A mammogram confirmed again it was a cyst. However, an abnormality appeared in my other breast. After additional x-rays were taken I was told it was probably benign but to be "absolutely sure" I needed a biopsy. Still, I felt no need for alarm. The biopsy was done two weeks later. The results would take a week and that in the meantime I was not to worry. So when I learned that the biopsy showed breast cancer, I was in shock. I felt like the Grim Reaper had swept down on me and was about to hold me captive for some unknown period of time...maybe even permanently. My husband was equally stunned by the news but remained steadfast in his support and optimism. My parents were devastated when I told them I had cancer, mom feeling the hardest hit.

butterfly After careful review of my options for treatment, I chose the sound advice of my surgeon who recommended a mastectomy and was comfortable with my decision. It was hard to tell our 12-year-old daughter. She needed to know the facts so we could help her deal with this news. She listened intently as I reviewed the sequence of events-finding a lump, having the x-rays, having the biopsy and now learning the final verdict. Once I reassured her that I had every intention of living through this, she then asked me questions that truly amazed me. One was, "Will the doctor move your right breast to the middle of your chest? If he doesn't, you will lean to the right when you walk." I explained to her that I would be getting an artificial breast to wear in a special bra.

butterfly My surgery was performed on July 14, 1992. We referred to my surgery as "transformation" surgery because I was being transformed from a victim into a breast cancer survivor. My husband was at my side when I awakened. My parents were relieved. Once on the nursing unit I felt a strange sense of deja vu, except rather than being the nurse caring for a mastectomy survivor, I was the survivor. The unit being busy, I wanted to be as little bother as possible. My husband stayed late to help me. When he left me that night, I was for the first time alone...alone to reflect on exactly what had happened to me that day. At that moment, my nurse reappeared to check my IV and hemovacs before change of shift. She asked me how I was doing. Perhaps it was the impact that making eye contact has. Even though I told her I was fine, tears streamed down my face. I never imagined being a mastectomy survivor. Now I was dealing with the physical and emotional impact this experience had thrust onto me.

butterfly Though it was time for report, she told her coworker to wait because "I'm with a patient." Though I wanted to be home with my husband holding me that night, I wasn't. Here was a woman I had never met before and I knew I would remember forever. Her name was Myck.

butterfly My post-op recovery went pretty much as planned. When I went to be fitted for my breast prosthesis, I took my mother along. Mom agreed that the fit "had to be perfect." Once my prosthesis was in place I stood taller again, my confidence restored.

butterfly Mom's face looked relieved. My new bosom buddy was in place. I chose to name my new breast "Betty Boob." During the summer of 1994, my mammogram displayed troublesome news once again and Betty got a roommate, "Bobbie Sue." (I had a second mastectomy).

butterfly I am now a published author and national speaker on my experiences with breast cancer, focusing on the value of humor. Getting breast cancer was an awful experience; it also is one of the best things that has ever happened to me and my family. My marriage was strong but now is even stronger. My mother and I co-founded a national nonprofit organization targeted to provide support for mothers of daughters diagnosed with breast cancer (MSDBC). I work with the staff at the Johns Hopkins Breast Cancer Center who are committed to improving care for women with breast cancer because I want to help make it better, and make it easier, for women who are diagnosed in the future.

MSDBC Mothers Supporting Daughters with Breast Cancer



Angel



Lillie's Dad
Angel
pencil It was rather strange the evening when our daughter Lillie called and asked me if I would write a little bit about being a parent of a cancer victim. Since I consider myself a rough and tough farmer, it is very difficult to say the things that I feel, or to put them into print, but if you are the unfortunate person who has been diagnosed as having CANCER, bear with me and share my thoughts for a few minutes.

pencil I was watching a program on the TV when our daughter called, and I borrow the title from that program: The Day the Bubble Burst. That was the story of the 1929 market crash. For an explanation of why I say "The Day the Bubble Burst," having started out as very poor farmers, struggling to make ends meet and finally breaking through, I thought we had it all. We had political power, we had prestige in the community and were financially comfortable to buy the things we needed, or at least anything we thought we needed.

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little Lillie The beginning of the day the bubble burst I guess may be insignificant, but I was in the shop some 100 feet away from the house and I heard a noise. I finally came in thinking that my wife was laughing, which is very unusual, for her to really break up. When I found her on the sofa, I realized that she really had broken down, I think for the first time in her whole life. Finally, I got her quieted down enough to hear the story that Lillie had called and it was cancer. You immediately think back to what I could have done! Have I contributed to it? Many things come to mind. Why my family? Why my child? Why not me? When you crawl back in your big green glass-enclosed monster, where you are by yourself on a farm tractor, you can think. You think of everything, I suppose. How when she was a child growing up that she was fortunate, or unfortunate perhaps, to be born to workaholic parents. I did not take the time when she was growing up to be with her as I should. I was busy keeping the wolf from the door and attempting to make a comfortable future for us.

pencil She was very subtle in knowing how to get what she wanted. She worked hard for what she needed. I remember that our house was a rather rough looking old farm house. Her subtle way of waking up Dad was to go out in the yard and use her talents as an artist to paint the farm house where we live. When I saw the house in a picture I knew then it was time to fix up the place. But this was her way to get what she needed and what she knew her mother wanted.

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I can relate many, many times about her compassion. How she has touched people when she was growing up. When I had a serious chemical burn she would drive 50 miles one way after being in class all day, to give my injury a Betadine scrub so that my leg would not get infected and carry scars. She worked for Dr. Kaufman in Rock Hall when she finished nursing school. Since then I have heard so many people remark that she was so compassionate. They said that they couldn't have made it without her. Compassion has been her trademark. Doing for others and not asking for anything in return. You ask why does cancer happen to this type of person? Not being a religious person, it is difficult to say the things that you would like to say, but perhaps by her having cancer she will be able to educate and help many, many others, including parents and children.

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When you hear the word CANCER of your daughter and you have a beautiful granddaughter coming on, your thoughts leave the other members of your family and go to the daughter and granddaughter. You wonder what will happen? Who will raise her? Where will she go to school? What will she miss out on? And after a day of thinking about these things, I was able to say to my wife, in full belief, "Don't worry, Lil will make it." I said since the beginning of this crisis that Lil will see this child raised and educated. Now that she is truly a survivor, we feel that she will.

Dierkers pencil As a father, I have gone back over the farm activities we had while our children were growing up. The chemicals we used on the farms we knew nothing about and had no supervision about their danger. The spittle bug on the hay you sprayed with a chemical. The flies in the barn you sprayed with DDT. There were no restrictions and no guidance. If a little would work, you put on more. The airplanes flew the cornfields with Toxiphene and other related chemicals for cutworm. We handled chemicals of all kinds on the farm that were used in the production of corn, soybeans, hay and cattle. You look back, wondering could some of these have been the culprit? We live across from Aberdeen (MD), which was a proving ground and Edgewood, which was a proving ground for chemicals. You wonder if this could be it. When she was a child living here did the ships coming down the Chesapeake Bay pumping out their bilges contribute to it? Or is this Mother Nature and God saying, "Well, we need to wake up some people real bad." And here it goes again. I think I can say without contradiction that this has changed our lives.

pencil I know that Lillie was one of the most compassionate persons that I have ever known, but if there could be a way to be more compassionate I think this has made her even more so. A personal thing as a father: Whenever I have had any problems and had to go to the hospital for something, her hand on your shoulder or standing by your bed had the tranquilizing effect of any medicine. Her touch sends into your body the most tranquil medicine that you could ever have. She and I have a close relationship. When we see each other, we either hold hands or put our arms around each other and it is not necessary to say anything. We know what each other is thinking.

pencil As you look back at a person in her position discovering that she had cancer, you realize that maybe something had made her set her life up. She had a good husband, a good job, had made many friends and I think this was the salvation of it all. The friends she had made here as well as in other places seemed to unite in prayer and in best wishes. I suppose that if I had to sum it up, prayer was one of the biggest things, but the laughter and happiness that she displays to other people in hiding her own fears have got to be another part of it. She knows how to laugh; she knows how to enjoy life; she knows how to be compassionate with other people. These things have been her salvation.

pencil If you are unfortunate enough to be the recipient of the news that you have the dreaded cancer, don't try to blame yourself; don't try to blame everyone else; don't say why me? If any advice could be given, it is this. Take a big yellow pad. Put down the good things that have happened in life; then put down the bad. You will probably find out that the good things outweigh the others. Be there when you are needed and have the good sense to let the person have time to himself or herself when you are not needed. Realize that you take life one day at a time and that money won't buy everything; that friends, prayers and memories of good times, good laughter and a close relationship with your family will probably help the doctors and the good hospitals to restore you to good health.




angel


Lillie's Mom
angel
rainbow Mom God had blessed us with two "whole" children who brought us tremendous amounts of joy. From birth, our daughter seemed to be plagued with various ailments, yet always appeared to be the healthier child. Fortunately, none of the unusual happenings seemed to deter her from her accomplishing fantastic things at very early ages. Being on a farm afforded both of our children on-the-scene education that takes years for city or town children to learn

rainbow At the age of three, she began performing before audiences, singing songs we learned together--songs that were long and difficult for many adults to learn. Consequently, she never had stage fright or knew what being bashful meant. I really believe that our music was the thread that bound the family together. We always felt the need to turn to it when things were going wrong; it helped us survive the difficulty at hand.

rainbow

There have been a number of times in my life when I have made the remark, "If I can get through this mess, I can get through anything." As I look back at some of the things that I termed a "crisis," it almost makes me laugh. Some of them were child's play by comparison to the things that were waiting around the corner in later years.

rainbow We have had the hail storms that destroyed corn crops, a fire that wiped us out of the dairy business, droughts that made us wonder why we put so much blood, sweat and tears into the farming business and one school year when our children were forced to attend rival schools. All of these things seemed to swat us down, but we came back to do battle another day. These situations make one feel helpless, but the hope of doing better next time is not destroyed.

rainbow Each time I came forth with my famous statement; each time I wondered if I would be conditioned for the next challenge that had my name on it. I began to be able to adjust better, or at least I thought I could. Many times folks did not understand my ability to cope with these crushing blows was not insensitivity, but strength to see a situation through the end without folding. It was holding on in spite of adversity. We survived. Many years have passed since the rival-school year and many crises came into the picture.

Dierkers rainbow

My husband's mother once said that when a child is born, one worries about it until either you or it dies. She was probably correct. I thought I could handle nearly anything that was dealt to me. Through level-headedness, music and prayer, many of the things that came my way were overcome. Then our daughter told us that she was going for a mammogram. I knew something was very wrong.

rainbow The waiting period between the time we knew that something was suspicious and when the pathology report from the open biopsy was due was an eternity. Each day when she returned from work I would call to find out what she knew. Each day she still had heard nothing. I prayed that everything was all right.

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Finally, on this day when I called, there was a hesitation about what she knew. Then she quietly said, "It wasn't what we wanted." Then I knew it was a new crisis. I contained my composure until I hung up the phone. At that moment I felt as though someone had just told me that she was already dead. I know that sounds very strange, particularly from a person who has always been able to hold together regardless of what was going on. But this time I felt as though the wrong generation had been attacked. It was not her turn. I could handle this much better myself. Mothers can heal themselves much easier than having their loved ones in pain.

rainbow

I began crying and sobbing, as I said before, as though she were already gone. What am I going to do to help her now? How am I going to help our granddaughter? How am I going to help our son-in-law? And worst of all, how am I going to help my husband, her father, who believes that she can almost walk on water? When my husband came into the house and found me weeping, he surmised what was wrong. All I had to say was that I heard from Lillie. He said later that it was the first time in the 50 years that we had known each other that he saw me go to pieces immediately upon hearing bad news. Usually, I held up until a crisis was over before I showed any affect at all.

rainbow "I can't stand it," I repeated over and over again. "There is nothing fair about this. She doesn't smoke or drink. All she is guilty of is working too hard. Why are energetic people punished like this? I could handle this much easier if it happened to me." I went on and on. He tried to comfort me, but there was little he could do when he felt as bad as I did. It is the most helpless feeling that one can experience. You are here, your child who is a hundred miles away has been notified that she has cancer and there is no magic wand to make it disappear. It just isn't a bad dream that you come out of either. There is no way to escape.

rainbow

There were several things that I was working on at that time and I was making notes about them. I was constantly using the wrong date. I was hung up in May, it seemed. That was prior to the announcement that cancer had found another fertile spot to have fun. I suppose I wanted time to reverse, so it would not be known that we had a new crisis. One's brain works in strange ways. I competely forgot my sister's wedding anniversary and her husband's birthday. They came and went in July, but I was still catching myself dating things May.

rainbow Nothing seemed to be going right for me. Fortunately I did not have what I used to call "a real job" away from home. All of the work I do now is freelance or keeping the farm books, so my use of the wrong month could be corrected without harm. I functioned much like a robot. Many things were done by rote. Many other things were not done at all. Some things that had seemed very important no longer had meaning or value. I called all of my friends in various churches and asked that our daughter be placed on their prayer list. We had people praying in the entire country, many parts of Maryland, in the District of Columbia, in Colorado, in California and half way around the world (since our son and his family were stationed in Japan).

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After the mastectomy was completed, there was another waiting period. I was not doing well in the section marked "patience." I felt as though I wanted to find the person in the labs where the testing was being done and make sure they were doing their job properly. The family accuses me of wanting to have things done properly anyway. Why not? That's what a person is paid to do. I also wanted folks in the labs to get moving before I was totally crazed with concern about this whole thing. Fortunately I was not denying that this was serious, even though I wanted the clock to reverse to a time when everyone was well, or at least, when we thought we were. I just wanted answers and I wanted them pronto, not later.

rainbow

As the days dragged on, friends inquired about our daughter each time I happened to meet them, on the street, in the grocery store, anywhere. Each time I found myself being teary-eyed and had to apologize for showing such emotion. One day, however, when a family acquaintance asked about her, as I continued to tell him, the tears welled up and he quickly said, "Oh, I'm sorry that I asked. Please excuse me." I knew then that I had to get hold of myself. The last thing I wanted to do was to turn off folks who were genuinely interested, so I had a firm talk with myself and made it very clear that I could do better. As luck would have it, I saw the same man that evening at a meeting and went to him to thank him for making me realize that I could control my inner feelings, particularly when folks who inquire are genuinely interested in her health.

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Fortunately, the lymph nodes were negative, so we felt that the tide had finally turned in our favor. Now it was really time to give thanks for blessings. God has spared us all for a reason, I believe. We now need to continue to be crusaders who tell others there is life after cancer, that there is life after a mastectomy; that parents can be supportive to each other as well as to the family member who is the cancer survivor.

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Now I can say that Lillie opted to lose a body part in order to save her life. This delightful, bubbly young woman with wit so sharp that one wondered why she didn't have a daily newspaper column, or some other way to share it with others who needed a laugh to survive the day has taught all of us many lessons through the years, but making us realize how precious life can be, is probably the most important lesson of all.





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